EP.345/ REPLAY: How to Live Well with Endometriosis and Ehlers-Danlos with Natalia Kasnakidis
Do you get full body pain? Does it affect your muscles, nerves or joints? Do you find that you need to rest after walking or find you tired more easily than others?
It might not just be endometriosis.
Ehlers-Danlos Syndrome is a group of 13 conditions which all affect connective tissue (collagen) in the body. Most are rare, but one type called hypermobility EDS is common - and out of those with this type of EDS, 6-23% have endometriosis. But that’s not where the connection ends…
32-77% of those with EDS have vulvodynia and or pain with sex.
33-75% have heavy menstrual bleeding.
73-93% have painful periods.
Additionally, histamine intolerance caused by Mast Cell Activation Syndrome is a co-condition of Ehlers-Danlos syndrome, and we also know that overactive mast cells play a role in endometriosis. Not only can this cause more painful periods, but it can also create problems like allergies and eczema to name a few.
Ehlers-Danlos Syndrome is also a huge risk factor for SIBO, and as you may now know, at present SIBO is estimated as affecting 80% of the endo population.
I could go on with the overlapping symptoms and connections, but instead, I’ll let you hear it first hand from Natalia Kasnakidis who is not only an endometriosis warrior, but is also living with Ehlers-Danlos syndrome, histamine intolerance and potentially postural tachycardia syndrome.
In this episode we talk about:
What the Ehlers-Danlos Syndromes are and how common they are.
The signs and symptoms to look out for and Natalia’s own experience with her symptoms.
The journey she tool to diagnosis and her tips for getting diagnosed.
The co-conditions of EDS and their symptoms.
Her key strategies for living well with endometriosis and EDS.
Show notes
https://www.thelondonhypermobilityunit.co.uk
https://join.sibosos.com/purchase/74117-Joint-Hypermobility-Syndromes?_ga=2.165935037.2051281346.1639065076-1956767515.1601293146
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Produced by Chris Robson